The EpiNet study group has established an open-ended epilepsy database. Investigators are welcome to register any patient who has had one or more epileptic seizures.

We have set-up several registries to follow specific groups of patients. At the present time we have registries for:

• First Seizure
• First Anti-epileptic drug
• Withdrawal of AEDs

Records for patients in these registries should be updated at least once per year.

We have also set up a SUDEP registry and have commenced a SUDEP case control study.

We have established a registry for children with infantile spasms in South Asia

We have concluded our first pragmatic randomised controlled trials – the EpiNet-First trials. (We were not able to recruit as many patients as we needed during the study period.)

Any epileptologist is welcome to propose a registry or clinical trial – indeed users are encouraged to do so. When establishing a registry, it is possible to add extra questions which are particularly relevant for specific patient groups, and/or to determine which questions are mandatory. It is possible to set rules regarding time of follow up, or to restrict who can participate in registries to a subgroup of EpiNet investigators (eg just Paediatric Epileptologists).

Peter Bergin, for the EpiNet Steering Committee.