Studies Currently Underway
Epilepsy Patient Database
The EpiNet study group has established an open-ended epilepsy database. Investigators are welcome to register any patient who has had one or more epileptic seizures.
We have set-up several registries to follow specific groups of patients. At the present time we have registries for:
Records for patients in these registries should be updated at least once per year.
We have established a registry for children with infantile spasms in South Asia
We have concluded our first pragmatic
Any epileptologist is welcome to propose a registry or clinical trial – indeed users are encouraged to do so. When establishing a registry, it is possible to add extra questions which are particularly relevant for specific patient groups, and/or to determine which questions are mandatory. It is possible to set rules regarding
Peter Bergin, for the EpiNet Steering Committee.